Top Ten Reasons to Donate to Standing Up to POTS
- Your contribution is tax deductible
- Our staff is 100% volunteer
- We have reached people over 150 countries
- We publish research papers about POTS in scientific journals
- We present our findings and raise awareness at conferences
- We actively support families living with POTS
- We publish awareness articles about POTS in professional magazines
- We have created an informative website with more than 40 pages
- We have a research fund for clinicians interested in studying POTS
- We are actively working to improve the quality of life for people with POTS now
We hope that you will stand with us by donating to Standing Up to POTS. This is a 501(c)(3) charitable foundation that is run by the dedication of our volunteers. There are no paychecks at Standing Up to POTS, so 100% of your donation will go to our Research Fund or educating the medical and general public about POTS. We are proud of our initiatives that have been launched recently to benefit the POTS community. Our IRS Employer Identification Number is 47-4805498. For those making donations greater than $50, a receipt will be emailed as an assurance of your contribution when you take your donation as a charitable deductions on your taxes.
Although postural orthostatic tachycardia syndrome (POTS) is not visible or typically life-threatening, it causes an enormous emotional, physical, and financial burden to POTS patients and their families. The burden to POTS patients is made worse by the lack of understanding and awareness by most people, combined with some of the unique features of POTS, such as inability to be upright, frequent fainting episodes, adrenaline rushes, severe brain fog, pain, and the unpredictable flares of these symptoms. The high degree of physical disability, cognitive impairment, pain, and disruption to schooling/career/life plans leaves these patients with myriad challenges to everyday living. They often struggle with finances, relationships, daily chores, grooming, maintaining proper nutrition and weight, communicating their needs to family and friends, finding supportive social circles, finding social activities that work for them, and maintaining good mental health.
While other organizations are currently working toward funding medical research and physician education for POTS, there is currently no expectation that POTS symptoms will be alleviated any time soon. In fact, recent indications suggest that some cases of POTS are caused by autoimmune disorders, which are notoriously difficult to treat. This suggests that POTS patients will be required to live with this disorder for the foreseeable future. No other foundation is currently working to improve quality of life of POTS patients, or to serve their day-to-day practical needs for living better. Standing Up to POTS has been created to address these needs. We hope that you will look at our Fundraising Brochure.
Support our Research Initiatives
Standing Up to POTS is proud to conduct our own original research on postural orthostatic tachycardia syndrome (POTS) to help improve the quality of life of those suffering from this invisible illness. Initiated by Dr. Cathy Pederson, Standing Up to POTS launched several major research projects on functional disability in the POTS population and its impact on quality of life. We have published articles in Clinical Autonomic Research, Science and Nature of Sleep, and Journal of Health Science & Education. Additionally, we are testing a new suicide screening tool that has been designed specifically for people with chronic illness.
Standing Up to POTS is also proud to fund POTS research by leading physicians and researchers across the globe. In 2016, we initiated the Standing Up to POTS Research Fund that will support grants to leading scientists interested in conducting POTS research. We support and encourage research that can lead to improved quality of life for POTS patients now. To date, we have awarded $41,250 to POTS research teams in Canada, Germany, and the United States.
Support our Awareness Initiatives
Standing Up to POTS is committed to educating healthcare practitioners about the realities of living with a chronic illness like POTS. By targeting publications and other materials about POTS toward physicians, physical therapists, and psychologists, we can increase general knowledge of the disorder in our healthcare professionals. We published our first paper in the May, 2016 issue of Counseling Today that discusses chronic illness, depression, and suicide risk. We published a second paper in Health & Social Work on chronic illness and suicide risk in 2017. Our third big paper in a professional magazine was about assessing depression in the chronically ill,, also published in Counseling Today.
Amazon Smile. If you shop on Amazon, please find us on Amazon Smile. Part of your purchase price will be donated to Standing Up to POTS each time you order as long as you enter through smile.amazon.com. There is absolutely no cost to you, but this program benefits Standing Up to POTS each time you make a purchase.
Thrivent Choice Dollars. If you are a member of Thrivent Financial for Lutherans, Standing Up to POTS is proud to be eligible to receive Thrivent Choice dollars through Thrivent's charitable donation program. We hope that you will log in and donate some of Thrivent's charitable giving dollars to Standing Up to POTS.