Top Ten Reasons to Donate to Standing Up to POTS
- We are run solely by volunteers - there are no paychecks at Standing Up to POTS
- We have awarded $80,150 of POTS research to improve quality of life to date
- We reach people over 150 countries through our website and social media
- We publish research papers about POTS in scientific journals
- We run online support groups for families living with POTS
- We publish awareness articles about POTS in professional magazines
- We maintain an informative website with more than 40 pages
- We spread awareness in local communities
- We work to improve the quality of life for people with POTS now
- We need YOUR help
We hope that you will stand with us by donating to Standing Up to POTS. This is a 501(c)(3) charitable foundation that is run by the dedication of our volunteers. There are no paychecks at Standing Up to POTS, so 100% of your donation will go to our Research Fund. We are proud of our initiatives that have been launched recently to benefit the POTS community. Our IRS Employer Identification Number is 47-4805498. For those making donations greater than $50, a receipt will be emailed as an assurance of your contribution when you take your donation as a charitable deductions on your taxes.
Direct Donation to Support POTS Research and Awareness
Although postural orthostatic tachycardia syndrome (POTS) is not visible or typically life-threatening, it causes an enormous emotional, physical, and financial burden to POTS patients and their families. The burden to POTS patients is made worse by the lack of understanding and awareness by most people, combined with some of the unique features of POTS, such as inability to be upright, frequent fainting episodes, adrenaline rushes, severe brain fog, pain, and the unpredictable flares of these symptoms. The high degree of physical disability, cognitive impairment, pain, and disruption to schooling/career/life plans leaves these patients with myriad challenges to everyday living. They often struggle with finances, relationships, daily chores, grooming, maintaining proper nutrition and weight, communicating their needs to family and friends, finding supportive social circles, finding social activities that work for them, and maintaining good mental health.
While other organizations are currently working toward funding medical research and physician education for POTS, there is currently no expectation that POTS symptoms will be alleviated any time soon. In fact, recent indications suggest that some cases of POTS are caused by autoimmune disorders, which are notoriously difficult to treat. This suggests that POTS patients will be required to live with this disorder for the foreseeable future. No other foundation is currently working to improve quality of life of POTS patients, or to serve their day-to-day practical needs for living better. Standing Up to POTS has been created to address these needs. We hope that you will look at our Fundraising Brochure.
Support our Research Initiatives
Standing Up to POTS is proud to conduct our own original research on postural orthostatic tachycardia syndrome (POTS) to help improve the quality of life of those suffering from this invisible illness. Initiated by Dr. Cathy Pederson, Standing Up to POTS launched several major research projects on functional disability in the POTS population and its impact on quality of life. We have published articles in BMJ Case Reports, Clinical Autonomic Research, Clinical Psychology and Psychotherapy, Science and Nature of Sleep, and Journal of Health Science & Education. Additionally, we are testing a new suicide screening tool that has been designed specifically for people with chronic illness.
Standing Up to POTS is also proud to fund POTS research by leading physicians and researchers across the globe. In 2016, we initiated the Standing Up to POTS Research Fund that will support grants to leading scientists interested in conducting POTS research. We support and encourage research that can lead to improved quality of life for POTS patients now. To date, we have awarded $80,150 to POTS research teams in Canada, Germany, Sweden and the United States.
Support our Awareness Initiatives
Standing Up to POTS is committed to educating healthcare practitioners about the realities of living with a chronic illness like POTS. By targeting publications and other materials about POTS toward physicians, physical therapists, and psychologists, we can increase general knowledge of the disorder in our healthcare professionals. Our Board of Directors has been publishing research and awareness papers every year for the past several years. Please check out our publications!
Donation through Daily Living
Amazon Smile. Link to Standing Up to POTS through Amazon smile, and 0.5% of your purchase price will be donated to our organization. You must enter through this link for us to receive a donation from your shopping. https://smile.amazon.com/. Please help us advertise this on social media!
Benevity. This charitable platform is used by many large companies around the world to promote philanthropic giving. https://causes.benevity.org/content/standing-pots-inc
Facebook: Donate your birthday. Our members joining together to raise $1,000s for the Standing Up to POTS Research Fund each month in this way.
Kroger Plus Card (currently an option in central and southwest Ohio). Those who link their Kroger Plus card to Standing Up to POTS online donate to us each time they swipe their Kroger card. https://www.kroger.com/account/enrollCommunityRewardsNow. Filling out the paperwork is easy – if you live in an area with Kroger and would be willing to get Standing Up to POTS signed up, that would be wonderful!
Thrivent Choice. For members of Thrivent Financial for Lutherans who get Thrivent Choice dollars, this is a great way to make a difference in our POTS community by designating dollars to SUTP. https://www.thrivent.com/making-a-difference/living-generously/thrivent-choice/
Your Cause. This charitable platform is used by many large companies around the world to promote philanthropic giving. Find us at this link. https://solutions.yourcause.com/
If you would prefer to donate through purchasing a copy of the My Life with POTS book, written and illustrated by children touched by POTS, you can click the button below to place your order.