Giving Tuesday Fundraiser

Please support the Standing Up to POTS Research Fund. In the United States, there are more people suffering from POTS than amyotrophic lateral sclerosis (ALS), multiple sclerosis, and Parkinson’s Disease combined. The National Institute of Health is funding $248 million dollars in research for these disorders, but has allocated $0 for POTS or dysautonomia research. We need your help!Svetlana Blitshteyn quote 2017

While other organizations are currently working toward funding medical research and physician education for POTS, there is currently no expectation that POTS symptoms will be alleviated any time soon.  In fact, recent indications suggest that some cases of POTS are caused by autoimmune disorders, which are notoriously difficult to treat.  This suggests that POTS patients will be required to live with this disorder for the foreseeable future.  We are currently working to improve quality of life of POTS patients through research, advocacy, and support. 


Silent Auction on Facebook: November 27 - December 4.  Highest bidder at 7:00 p.m. EST on December 4 wins two round-trip tickets from JetBlue airlines

Two round trip airline tickets to any place that JetBlue travels.  Standing Up to POTS Board members and those living in the same household are not eligible to win.

Andrea Maier quote 2018Fundraising on Facebook

We need your help to reach our $20,000 fundraising goal!  If you set up a fundraiser for Standing Up to POTS on your personal Facebook page between November 27 and December 31, 2018 and raise $200, we will send you this amazing tote bag - GUARANTEED.  We can see your fundraisers on our Facebook page, but will message you to get your physical mailing address in order to mail you the tote.

Current Initiatives of Standing Up to POTS

In research, Standing Up to POTS has

  • Awarded $41,250 in grants to research teams in three countriesHeather Edgell quote 2018
  • Published eight scientific and professional papers on quality of life in 2017 and 2018

In advocacy, Standing Up to POTS has

  • Visitors from more than 150 countries on our website at
  • Shared new research findings from scientific articles via social media

In support, Standing Up to POTS has

  • More than 2,000 POTS patients and family members in our online support groups
  • More than 7,500 people who follow us on Facebook, Twitter, and Instagram

Interesting Man Doodle ThruWe hope that you will stand with us by donating to Standing Up to POTS, a 501(c)(3) charitable foundation. There are no paychecks at Standing Up to POTS, so 100% of your donation will go to our Research Fund. Our IRS Employer Identification Number is 47-4805498.