Standing Up to POTS Research Grants
Founded in 2014, Standing Up to POTS® is a 501(c)(3) non-profit organization that is run 100% by volunteers. Our mission is to improve the quality of life for people with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.
The Standing Up to POTS® Research Fund supports and encourages research that can lead to improved quality of life for POTS patients. The fund provides monies for POTS research, with preference for projects that will lead to an improvement in the quality of life for those suffering from POTS now. Awards up to $100,000 US dollars shall be made with the approval of a majority of the Standing Up to POTS® Board of Directors. Board members shall not vote on their own funding requests. Grantees are not eligible for another grant until the current grant has been completed.
Standing Up to POTS® is most interested in research proposals with the potential to help people suffering from POTS right now. All proposals should be relevant to one or more of the following priority areas:
- New or improved methods to diagnose POTS more quickly and definitively
- New treatment approaches to POTS
- Improved targeting of treatment for POTS patients with specific symptoms, biomarkers, or underlying cause
- Identifying underlying causes of POTS to improve treatment effectiveness
The Application Process
Section I: Applicant information
- Names and institutional affiliations of researcher(s)
- Brief listing of professional qualifications to conduct this research project
- Disclosure of potential conflicts of interest
Section II: Description of the research project
- Executive summary describing goals, methods, and anticipated outcomes
- Background information relevant to the proposed project
- Description of experimental protocol to be used in the study, including
- Recruitment strategies to get people into the study
- Target participants (sex, age, diagnoses, etc.)
- Groups (if applicable)
- Complete procedure to be used with participants
Section III: Budget information
- Itemized budget for anticipated costs to conduct the research project, to total no more than $100,000 US dollars
- Equipment costs like use of the tilt table test, QSART, or PCR
- Expendable materials required to complete the study, like EKG electrodes, gloves, and blood tests
- Research assistant, if applicable, please outline their
- Responsibilities for your research project
- Percent effort toward this project
- Estimated total time they will give to this research
- For projects that clearly exceed the maximum grant award, please explain how the remainder of the study will be funded.
- Any special issues that the Board should consider, including other funding sources for this project
Authors will be notified in writing of the decision of the Standing Up to POTS® Board regarding the funding status of the submitted grant within 30 days after the grant deadline. A signed copy of the grant agreement must be returned to Standing Up to POTS within 30 days of receipt in order to have the grant funded. Evidence of an approved IRB application must be sent to Standing Up to POTS immediately upon receipt (typically within 30-60 days).
If funding is awarded, payments will be divided into three allotments to be used during the 24 month granting period.
- Standing Up to POTS® will mail a check within 30 days of receiving official confirmation of Institutional Review Board (or another ethics board) approval for the project AND a signed financial agreement
- First payment: 50% of total amount granted
- Second payment: 25% of total amount granted when receive brief budget/receipts showing initial funds have been appropriately spent
- Third payment: final 25% of the total amount granted when receive brief budget/receipts showing funds have been appropriately spent
- Any previously dispersed funds not spent by the end of the grant period will revert immediately to Standing Up to POTS® via check or PayPal.
- A grantee may request a continuation of the project in writing at least one month before termination of the grant, if necessary. Requests for extension should include a report on the project thus far, the reason an extension is being requested, and a plan for the completion of the project
- Grantees are eligible for only one extension, for a period of no more than six months
- The Board will review the request and make its decision to continue or terminate support
Responsiblities at the Conclusion of the Grant Award
Within one month of the termination of the grant period, the grantee shall submit a written report to the Board, which includes a:
- Summary of the major results of the research project
- Financial statement outlining the use of all grant funds
- Copies of any written work resulting from the grant (e.g., abstracts presented at conferences, journal articles)
Those who are delinquent in reporting will receive lesser consideration for later funding requests.
Standing Up to POTS® shall be listed as a funding source in all publications and presentations resulting from this project.
Check out our previously awarded grants.