Understanding Suicidal Thinking and Behavior in a Chronically Ill Population

SUTP Participants NeededStanding Up to POTS is proud to be partnering with counselors and suicide prevention specialists to tackle the issue of suicide risk in chronically ill populations.  We understand that people living with chronic illness have a unique set of issues for which current suicide screening scales may not be sensitive.  We believe that appropriate screenings for suicide risk in the chronically ill population can save lives, and we thank you for helping us with this research project.

This study has been approved by the Wittenberg University Institutional Review Board (U.S. DHHS IORG0008550).  If you have questions about this survey, you can send them to Dr. Cathy Pederson at This email address is being protected from spambots. You need JavaScript enabled to view it. or the Wittenberg Institutional Review Board Chair, Dr. Darby Hiller-Freund at This email address is being protected from spambots. You need JavaScript enabled to view it. or call Dr. Hiller-Freund at 937-327-7930.  Results from this survey will be published in the scientific literature.  Links to the abstracts and articles will be disseminated through the Standing Up to POTS Facebook page and website as they get published.

You must be at least 18 years old and have a chronic illness to participate in this survey.  We are seeking chronically ill participants who have thought about suicide as well as those who have not.  Before you can start the survey, please read the informed consent form and give consent to participate in the study. 

 

Informed Consent Form

What is the purpose of this study?  

This survey will include people with chronic, invisible illness like postural orthostatic tachycardia syndrome, mast cell activation syndrome, Ehlers-Danlos syndrome, and chronic fatigue syndrome.  The purpose of this study is to learn about the suicidal thinking in the chronically ill population.   

What do I have to do to participate?  

If you agree to participate in this study, you will be asked questions about your health status through our online survey which generally takes 9-15 minutes to complete.  You will be asked questions about depression, suicidal thinking, perceived burdensomeness, loneliness, and belongingness.  Once you complete the online survey, you are finished with the study.

What are the benefits of participating in this study?

This study will be used to develop a suicide screening tool for people with chronic illnesses.  Data from this study will be published in scientific journals to increase awareness about suicide risk in the chronically ill population.  You will not be compensated for your participation, however. 

What risks are associated with this study?   

There is minimal physical or social risk for this study.  This study can be completed from a computer or mobile device at a time and place of your choosing. 

If the questions make you uncomfortable, you may choose not to answer them.  If questions trigger a sense of hopelessness or increase suicidal ideation, you can call the National Suicide Prevention Lifeline at 1-800-273–TALK (8255) to speak with a counselor. They are available 24 hours a day, 7 days a week and are professionally trained to listen and get you the appropriate help.   You can also text HOPELINE at 741741 with the word "start" to text with a live, trained specialist.  HOPELINE Text Line serves anyone in any type of situation, providing access to free, 24/7 emotional support and information via text message.

Will my personal information remain confidential?  

Your individual answers will be kept confidential.  We will NOT ask any identifiable personal information on the survey, including your name, address, or social security number.  Therefore, your personal information will never be associated with your data during analysis or in publication of the results.  We will place you into a group based on your overall health, and use your answers to compare differences between our groups. 

What will happen if you decide to stop participation in this study? 

It is your right to withdraw from this study at any time.  If you decide to withdraw, please stop filling out the survey and close your browser.  

Who should I contact if I have questions? 

If you should have any questions about this research study, you can send them to Dr. Cathy Pederson at This email address is being protected from spambots. You need JavaScript enabled to view it. or Wittenberg Institutional Review Board Chair Dr. Darby Hiller-Freund at This email address is being protected from spambots. You need JavaScript enabled to view it. or you may call Dr. Hiller-Freund at 937-327-7930.

STATEMENT BY PERSON AGREEING TO PARTICIPATE IN THIS STUDY

I am 18 years or older, I have a chronic illness, and I agree to participate in this study.

I am not interested in participating in this study. I will stop now and close my browser.