Standing Up to POTS is a 501(c)(3) nonprofit organization run exclusively by volunteers. Our volunteers play a vital role in helping us to promote our mission: Standing Up to POTS will investigate quality of life issues, implement research-based initiatives to improve quality of life for people with POTS, and accelerate public awareness. Volunteers who spend even 1-2 hours a month would make a huge difference in what Standing Up to POTS can do. Many hands make light work.
Below are specific areas where we are seeking volunteers:
- Writing awareness pieces and mentioning Standing Up to POTS. There are many avenues for writing articles about your experience with POTS online. Look at The Mighty, Patient Worthy or other sites as places to increase awareness about POTS in the general public. Does your child's school send out a newsletter? What about a newsletter at work? Could you submit an article to your local newspaper? Writing a short column about POTS symptoms and diagnosis could help other families shorten their time to diagnosis.
- Coordinating a local fundraiser to benefit the Standing Up to POTS Research Fund. Choose from a variety of options to fit your personal style as you fundraise for our organization. Standing Up to POTS is run completely by volunteers. 100% of the donations to the Research Fund will be spent on POTS research. Check out our fundraising page for helpful tips.
- Distributing Standing Up to POTS brochures to healthcare providers in your area. Raising awareness of POTS in our local communities can help those currently suffering from POTS and future patients. Distributing materials to family practice, pediatric, obstetrics/gynecology, neurology, and cardiology offices in your area can promote POTS literacy and generate understanding in your local healthcare practitioners.
- Starting a local meet up group. Many of us feel isolated by our illness. There may be other people in your community that also suffer from POTS who would benefit from your initiative to start a local support group. Meeting monthly or quarterly with others who truly understand life with POTS can be life changing. Check out our page on creating a meet up group.
- Getting local press coverage. Writing an article for submission to your local newspaper about your experience with POTS or an event that you are organizing is a great way to raise awareness locally. October is Dysautonomia Awareness month, and is a particularly great time to get the media to talk about POTS. Check out our page on creating press packets for ideas on how to raise awareness through your local media.
- Editing the website. It is important to check links to other pages and update information on the webpage regularly. Volunteers could edit 1 or 2 pages per month and send updates to a Board member.
- Finding important ideas from the scientific literature for the Fact of the Week. We send out soundbytes from the current scientific literature that pertains to POTS via Facebook and Twitter weekly. Volunteers could read the abstract and discussion section of articles published within the last year and send them in for use.
- Helping with graphic design. We need help with designs for brochures as well as t-shirts to be sent to donors and for events like the Standing Up to POTS 5K. Creative volunteers are definitely needed!
- Representing Standing Up to POTS at health fairs or conferences. Unfortunately, many healthcare practitioners are unaware of POTS and its debilitating effects on the individual and their family. Volunteering to speak one-on-one with healthcare practitioners or community members at your local health fair or conference is a great way to spread awareness about POTS.
- Finding potential corporate sponsors. Like most nonprofit organizations, we are always looking for new streams of revenue. Identifying new potential event sponsors, opportunities for corporate donation through purchase price percentage (they donate 5% of designated sales to Standing Up to POTS), or other avenues would be greatly appreciated!
If you believe in our cause and want to be part of our team, please fill out this survey. We appreciate your interest!