Profiles of People Living with POTS



15 Years Into POTS

Kristen, age 49, New York

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A 16 year journey to diagnosis

Jaclyn, age 32, Illinois

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A Decade of Living with POTS

Jess, age 25, Ohio

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A Desperate Listener in Remission, Thank You to The POTScast

Christina, age 46, California

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A diagnosis but no treatment: A journey to advocating for myself

Christina, age 27, California

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A Long Struggle to Find Answers

Jennifer, age 67, Virginia

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A POTS Domino Effect: From POTS to Gastroparesis, MCAS, & May-Thurner Syndrome

Georgia, age 23, Oklahoma

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A Teenage Perspective on POTS

Julia, age 15, Florida

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A Twelve Year Battle

Jamie, age 28, Kentucky

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Advocating for Myself as I do for my Patients

Heather, age 33, Wisconsin

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Advocation and Acceptance

Madison, age 18, North Dakota

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Aerial dancing and POTS

Zoe, age 17, Utah

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Change of Career with Diagnosis?

Brandon, age 25, Washington

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Chrysalis

Lucy, age 17, Iowa

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Climbing Toward My Future One Day at a Time

Neve, age 17, Australia

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Competitive Swimmer Fighting POTS

Tabby, age 15, Arizona

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COVID Exacerbated my POTS Symptoms

Paula, age 56, Oklahoma

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Crowned By Courage: The Strength Behind the Tiara and the Finish Line

Jessy, age 18, Massachusetts

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Developing POTS after pregnancy and COVID

Victoria, age 30, Nova Scotia, Canada

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Empowered by the Diagnosis

Lizzy, age 14, California

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Fighting for a Diagnosis: It's NOT Anxiety

Liliana, age 21, Texas

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Fighting for my Dream

Zoe, Wiltshire, United Kingdom

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Finding my Balance: Living and Thriving with POTS

Kelsey, age 15, Pennsylvania

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Finding My Power

Amanda, age 33, Maryland

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Finding the Light within the Dark

Lindsey, age 22, California

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Finding Your Inner Advocate

Kelsey, age 27, North Dakota

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Four Years of Unknown Illness

Gabby, age 21, Massachusetts

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Friendship and Chronic Illness

Nancy, age 20, United Kingdom

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From the Depths

Kristen, age 26, Pennsylvania

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Grueling Journey to Diagnosis

Laura, age 19

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How POTS Changed my Career Path

Tiffany, age 31, California

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How POTS changed my life

Danielle, age 29, Arizona

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I Understand Now

Annie, age 26, England

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I Will Never Give Up on Myself: Getting POTS after COVID-19

Jennifer, age 29, Illinois

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Invisible No More: My Journey to a POTS Diagnosis

Taylor, age 21, Florida

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IV Fluids Are Amazing

Patrick, age 59, Indiana

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Journey to my POTS Diagnosis

Morgan, age 16, Illinois

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Just a teen with POTS

Cameron, age 17, Virginia

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Learning to Care for Myself

Natalie, age 15, Virginia

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Learning to Listen to my Body

Mikayla, age 23, Pennsylvania

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Learning to Walk Again

Brooklyn, age 19, Texas

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Life with POTS

Kaelyn, age 19, New York

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Living Life POTSitive

Briana, age 26, New Jersey

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Living Life with POTS

Darcy Marie, age 32

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Living through POTS together

Peyton, age 19, Wyoming

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Living with POTS

Lillian, age 25, Delaware

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Living with POTS from 10 Years Old

Eliana, age 19, Virginia

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Living With the Disorder No One Understands

Hannah, age 19, North Carolina

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Mixing Oil and Water - POTS and the National Guard

Kris, age 22, Oklahoma

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My Disability Doesn't Define Me

Hannah, age 16, Connecticut

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My Fight with POTS

Eloise, age 14, United Kingdom

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My Journey from Lyme to POTS

Kaleigh, age 17, Connecticut

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My Journey to a POTS and Possible EDS Diagnosis at 35 Years Old

Erin, age 35, South Carolina

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My Life is Standing Still, Ironically...

Anne, age 56, France

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My Life With POTS

Abigail, age 17, North Carolina

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My Long and Sordid Tale

Rawal, age 31, Germany

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My POTS Progression over a Decade

Katie, age 28, New York

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My POTS Story

Kaitlin, age 22, Indiana

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My POTS was Worsened by COVID

Hannah, age 28, Massachusetts

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My Son’s Amazing Recovery from POTS

Bobby, age 13, Florida

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My Story with POTS

Mary, age 16, Tennessee

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Navigating High School with POTS

Meredith, age 16, California

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Navigating POTS

Jess, age 26, Colorado

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Navigating the Maze

Lizzie, age 17, Tennessee

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One Test Could have Changed Everything

Reanna, age 21, Nevada

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POTS after COVID infection

Sunny, age 41, New Mexico

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POTS after Pregnancy

Destiny, age 22, Nevada

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POTS and MALS discovery post COVID-19 infection

Brooke, age 21, Australia

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POTS and My Morning Routine

Lindsay, age 35, California

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POTS for a Lifetime

Tasha, age 22, Florida

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POTS from a Man’s Perspective

Denny, age 44, Pennsylvania

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POTS Head

Jaimee, age 16, Nevada

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POTS is Not Just in Teenagers

Kathleen, age 71, Rhode Island

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POTS: It Changed My Life and Forced Me to Adapt

Derek, age 26, Pennsylvania

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POTSie for Life

Rachael, age 37, Pennsylvania

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Professional Dancer Becomes Professional Patient

Rebekah, age 51, Missouri

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So many POTS but no Spoons

Jodi, age 41, Pennsylvania

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Spreading the POTSitivity: Embracing Life's Unexpected Turns

Camille, age 24, California

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Staying Positive Despite POTS

Terria, age 42, Tennessee

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Struggling through the Teen Years with POTS

Jessi, age 20, California

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The Daily Struggle with POTS for a Pre-Teen

Lily, age 12, Ohio

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The Invisible Battle

Lauren, age 17, Georgia

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The Long Fight

Teena, age 42, California

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The Silver Lining: Finding Friendship in Support Groups

Jolijn, age 42, The Netherlands

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The Story Of A Girl Who Wouldn’t Take No For An Answer

Caitlan, age 21

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The Ups and Downs of POTS

Nadia, age 14, Ohio

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Young People Can Have More Wrong Than "Anxiety"

Brittany, age 24, Califonia

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The purpose of this website is to inform and educate families about postural orthostatic tachycardia syndrome. The information provided here is not intended to serve as professional medical advice, diagnosis, or treatment. If you have health related issues, please contact a qualified health professional to get the personalized assessment, advice, and treatment that you need. Standing Up to POTS will not be liable for any direct, indirect, or other damages arising from this use of this website.

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