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Standing Up to POTS Initiatives

Our Initiatives

Standing Up to POTS Research Fund

Standing Up to POTS is dedicated to funding research that will help to improve the quality of life for people with postural orthostatic tachycardia (POTS).  The Standing Up to POTS Research Fund supports and encourages research that can lead to improved diagnosis and treatment for POTS patients. The fund provides money for research leading to publication or public presentation by people in the medical or research communities.  For more information, click here.

Publishing Original Research and Awareness Articles

Standing Up to POTS is actively writing and submitting manuscripts to broaden the awareness about postural orthostatic tachycardia syndrome in both the medical community and general public.  We are proud to run our own independent research projects that result in publication in scientific journals.  We are also thrilled to be writing articles in other venues to help increase awareness in the general public.  Please click here to see a full listing of our publications.

Thrivent CoverRaising Awareness in Thrivent Magazine, a Fortune 500 Company

Lily and Kate Pederson's book, My Life with POTS, was spotlighted in the Meet the Member Section of Thrivent Magazine in December, 2015.  The book chronicles Lily's two year struggle with postural orthostatic tachycardia syndrome from her own perspective.  The success of this book in fundraising for POTS research and the support of Thrivent was the cornerstone for the creation of our non-profit organization.  We were honored that Thrivent gave Lily the cover of the magazine as well.  Delivered to 1.2 million homes across the United States, we are thrilled to have POTS spotlighted in this way. To read or print a .pdf version of the article, please click here.

Support groups for people with POTS 

Standing Up to POTS on Facebook

This group is for anyone with POTS or family members experiencing POTS vicariously. This group provides support to members on their bad days, and cheers for the small accomplishments that mark progress. Links to the latest press releases and POTS research are also shared in this group. Click Standing Up to POTS Support Group - we would love to have you join our community!

Standing Up to POTS: Teen Support on Facebook
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This group is only for teens and college students who are battling POTS. Adolescents with POTS have unique issues related to school, peer pressure, and dealing with family that adults don’t have. We started this group to allow teens to talk with each other about these issues to decrease isolation and increase a sense of community. Teens and college students, click Standing Up to POTS: Teen Support to join our online community.

Our Annual Standing Up to POTS 5K/2K

Standing Up to POTS has created a tradition of gathering together with friends and family on WIttenberg University's beautiful campus in Springfield, Ohio for our annual 5K/2K. It is a great opportunity to meet other families living with POTS, exercise, and raise awareness about this disorder.