Sunny, age 41, New Mexico
I am new to the POTS family, I was just diagnosed a few weeks ago after surviving COVID-19. After a fun shopping trip with my friend, I contracted COVID and was admitted to the hospital's intensive care unit (ICU) due to hypotension and tachycardia. I spent three days in the ICU where doctors considered putting in a pace-maker to keep my heart rate from dropping too low.
After being released from the hospital, I went home still feeling fatigued, dizzy, and felt my heart racing whenever I stood up. After passing out, my wife took me back to the emergency department where they admitted me to the hospital once again for hypotension and tachycardia, only this time they could not figure out what was causing it.
The doctor on call put together a team to figure out what was causing my symptoms. It was determined that I have POTS and I could have already been suffering from it before the COVID, but the virus sent my POTS into overdrive. They prescribed me a new medication (Midodrine) three times a day, and referred me to a cardiologist.
After my visit with the cardiologist, I felt defeated. She informed me that there really isn’t much more we can do. She suggested adding exercise to my daily routine, but I am so fatigued all the time I’m not sure how that will work. I am new to this diagnosis but thankful I know what to call it. I am still in the learning phase but this website Standinguptopots.org has helped me realize I am not alone.