Have you ever wanted to participate in a POTS research project, but didn't know how to get involved? See if you qualify for any currently open projects right here!
IRB Approved Research Studies
The Institutional Review Board (IRB) is a body that reviews all protocols involving humans. Their job is to ensure that the benefits outweigh the risks for participants. These are online surveys, so you can participate from home!
Clinical Trial: Researching COVID to Enhance Recovery (RECOVER) funded by the National Institutes of Health
- Requirements: Have Long COVID with autonomic symptoms
- In-person at least 4 times at one of 50 sites across the United States
- Learn more: https://trials.recovercovid.org/autonomic
- Researchers: Christopher Granger, MD, and Cyndya Shibao, MD
Wittenberg University and Standing Up to POTS: Understanding Triggers and Symptom Load in POTS
- Requirements: 18 or older with physician diagnosed POTS
- Time to Take: 10-15 minutes
- Learn more: https://www.standinguptopots.org/POTSresearchstudy
- Researchers: Cathy Pederson, PhD (Founder of SUTP) and Rachel Wilson, PhD
University of Illinois: Understanding Fainting in POTS and/or Vasovagal Syncope
- Requirements: 18 or older who faint at least once every two weeks
- Paid research: wear Empatica EmbracePlus wristband for 8 weeks and press button with syncope. $400
- Learn more: https://illinois.qualtrics.com/jfe/form/SV_5C7h25RnFTT0IOW
- Researchers: Dr. Haohan Wang and Sirihaasa Nallamothu
Harvard University: Suicidal Thoughts and Behaviors Among Minoritized People with Disabilities
- Requirements: 18 or older and living in the United States
- Time to take:
- Learn more: https://harvard.az1.qualtrics.com/jfe/form/SV_eXSS8MH0ateKCLc
- Researchers: Melissa Shang, undergraduate thesis
Uniformed Services University of the Health Sciences: Long Term Effects of COVID-19 with POTS
- Requirements: 18 - 80 years old, documentation of COVID-19 infection (PCR, antibody test)
- Need to be able to travel to Bethesda, Maryland
- Learn more: https://medschool.usuhs.edu/med/research/translational-medicine-unit or email clinical.research.unit.53-ggg@usuhs.edu or call (301) 318-6024
- Researchers: David Saunders, MD, MPH, Daoqin Bi, MD, and Milissa Jones, MD, MPH, FAAP
University of Kentucky: Developing and Testing A Mobile Health System for Patients with POTS
- Requirements: 18 or older with at least 2 POTS symptoms in the past 3 months, including dizziness or fast heart rate upon standing
- Learn more: email UKPOTSLab@uky.edu
- Researcher: Dr. Jami Warren